CBC Happenings

What's happening at Collinsville Baptist Church and in our community.

Saturday, July 12, 2008

God Lives Under The Bed

I envy Kevin. My brother Kevin thinks God lives under his bed. At least that's what I heard him say one night.

He was praying out loud in his dark bedroom, and I stopped to listen, 'Are you there, God?' he said. 'Where are you? Oh, I see. Under the bed ...'

I giggled softly and tiptoed off to my own room. Kevin's unique perspectives are often a source of amusement. But that night something else lingered long after the humor. I realized for the first time the very different world Kevin lives in.

He was born 30 years ago, mentally disabled as a result of difficulties during labor. Apart from his size (he's 6-foot-2), there are few ways in which he is an adult.

He reasons and communicates with the capabilities of a 7-year-old, and he always will. He will probably always believe that God lives under his bed, that Santa Claus is the one who fills the space under our tree every Christmas and that airplanes stay up in the sky because angels carry them.

I remember wondering if Kevin realizes he is different. Is he ever dissatisfied with his monotonous life?

Up before dawn each day, off to work at a workshop for the disabled, home to walk our cocker spaniel, return to eat his favorite macaroni -and-cheese for dinner, and later to bed.

The only variation in the entire scheme is laundry, when he hovers excitedly over the washing machine like a mother with her newborn child.

He does not seem dissatisfied.

He lopes out to the bus every morning at 7:05, eager for a day of simple work.

He wrings his hands excitedly while the water boils on the stove before dinner, and he stays up late twice a week to gather our dirty laundry for his next day's laundry chores.

And Saturdays-oh, the bliss of Saturdays! That's the day my Dad takes Kevin to the airport to have a soft drink, watch the planes land, and speculate loudly on the destination of each passenger inside. 'That one's goin' to Chi-car-go!' Kevin shouts as he claps his hands.

His anticipation is so great he can hardly sleep on Friday nights.

And so goes his world of daily rituals and weekend field trips.

He doesn't know what it means to be discontent.

His life is simple.

He will never know the entanglements of wealth of power, and he does not care what brand of clothing he wears or what kind of food he eats. His needs have always been met, and he never worries that one day they may not be.

His hands are diligent. Kevin is never as happy as when he is working. When he unloads the dishwasher or vacuums the carpet, his heart is completely in it.

He does not shrink from a job when it is begun, and he does not leave a job until it is finished. But when his tasks are done, Kevin knows how to relax.

He is not obsessed with his work or the work of others. His heart is pure.

He still believes everyone tells the truth, promises must be kept, and when you are wrong, you apologize instead of argue.

Free from pride and unconcerned with appearances, Kevin is not afraid to cry when he is hurt, angry or sorry. He is always transparent, always sincere. And he trusts God.

Not confined by intellectual reasoning, when he comes to Christ, he comes as a child. Kevin seems to know God - to really be friends with Him in a way that is difficult for an 'educated' person to grasp. God seems like his closest companion.

In my moments of doubt and frustrations with my Christianity I envy the security Kevin has in his simple faith.

It is then that I am most willing to admit that he has some divine knowledge that rises above my mortal questions.

It is then I realize that perhaps he is not the one with the handicap . I am. My obligations, my fear, my pride, my circumstances - they all become disabilities when I do not trust them to God's care.

Who knows if Kevin comprehends things I can never learn? After all, he has spent his whole life in that kind of innocence, praying after dark and soaking up the goodness and love of God.

And one day, when the mysteries of heaven are opened, and we are all amazed at how close God really is to our hearts, I'll realize that God heard the simple prayers of a boy who believed that God lived under his bed.

Kevin won't be surprised at all!

When you receive this, say a prayer. That's all you have to do. There is nothing attached. This is powerful.

FRIENDS ARE ANGELS WHO LIFT US TO OUR FEET WHEN OUR WINGS HAVE TROUBLE REMEMBERING HOW TO FLY.

God Lives Under The Bed

Friday, July 11, 2008

Tonya Still At Home

Well, we are still at home. Tonya is still running a fever and sick at her stomach. That scan that was supposed to tell us what's wrong was negative. Yes, I said negative. Tonya goes back to the doctor on Tuesday. I guess we will see then what the next step is. For now anyway we are home and I hope to stay there at least for another week. I will keep you all updated on the next doctor's appt.
Brian

Thursday, July 10, 2008

Blake Is Doing Better.


One of Blake's first dad's family members was working in DC and drove up to see Blake today....we got a photo of him in the hospital that I'm attaching. He is continuing to improve....his motor skills are good and his brain function is good, just need more healing on his ears. They put headphones on him yesterday and he was able to hear a little, so we are hopeful his hearing will return 100% as the infection goes away.

Dee

Tonya Is Home!

We are finally home. Tonya is still sick at her stomach and has to keep a check on her temp. every 3 hours or so until next week when she goes back to the doctor. He is supposed to call us tomorrow with the results of the scan. I hope it shows something. We are home and Tonya is resting right now. In case you don't have it, our number is 442-4740.
Brian

Wednesday, July 09, 2008

Tonya Update

Day 22,
The doctor began the scan this morning. It had to be done in segments. So they began and brought Tonya back to her room. At 2:30 they came to get her again for a scan a 3 o'clock. the man who came to get her said the machine they were using broke. So now she had to be transferred to RMC by ambulance so they could do the scan. So she went and had the scan and came back. Now they want to take another picture in the morning. The doctor has her down for discharge at 730 but, she has to go back to RMC for one more picture to be taken. They don't come in until 8 am. We have to be in Huntsville before noon tomorrow to get Tonya's pump filled up. This will definately push us but if everyone gets on the ball I think we can make it. After Huntsville we will be able to come home. WOO HOO!!!!!!!!!!!!!!!

I don't know how long it will take to get the results of the scan back but the doctor said he would call us with them. So, now we wait, again.

Brian

Tonya Update

Day 21

The doctor came in today and told Tonya he might send her home today after the test. Then he remembered that the radiologist said he might want to take a couple of pictures in the morning. He did say she was down for discharge at 7 am tomorrow morning. Unfortunately, we have to leave the hospital going straight to Huntsville to get Tonya's pump filled up. Then we will be home. I hope!!!!! Thanks to everyone for all your prayers.
Brian

Tuesday, July 08, 2008

Tonya Update

Day 20,
Today Tonya was suppposed to go to Huntsville to get her pain pump refilled. Dr. Reddy called and spoke to Tonya's pain doc. Dr Willis. Willis said Tonya had enough medication in her pump to last her until Thursday. So, today they repeated the T.E.E., which is where they put a camera down your throat and look at your heart valve to see if it is infected. Luckily for Tonya they did not find what they were looking for. So no heart infection.
Tomorrow, Wed., they are going to do the "indium scan" that I talked about earlier in the week. The nurse told Tonya it would take about 6 hours to complete the test tomorrow. It involves taking xrays every so often so they will be taking Tonya back and forth for xrays during the day tomorrow.
A rheumatologist is supposed to be coming by to see her as well. We were told today that after tomorrows test everything is exhausted. We still don't have any answers and Tonya is still running a fever. She can go home Thursday so when she is discharged from the hospital, we are headed straight to Huntsville to get the pump filled. We have to be there before lunch time. Then it's home sweet home for a day or two at least.
Hopefully everything will stay on track and Thursday will be the day of homecoming but I don't know how long that will last. So, halleluja, I think.
Brian

Blake Much Better

Blake is moving around more. He walked to the end of the hall today instead of 5 steps. His motor skills are returning and his mental faculties appear untouched. His hearing is still out. There is nothing physically wrong with his ears. The neural connection between his ears and brain has not been restored yet. I hope it is soon.

Bill

Monday, July 07, 2008

Tonya Update

Welcome to Day 19,
Today was a complete fiasco. We found out that Tonya's pain pump alarm is going to go off tomorrow (Tues.). This is a must do to get filled up. Now comes the good part. We had to figure out a way to get the pump refilled and allow Tonya to be able to come back to the hospital. My suggestion was for Tonya to go to Huntsville by ambulance, even if I had to pay out of my own pocket, so she could get this done and return to her hospital room.
First of all, I contacted a friend of mine at Anniston Rescue and told him the delima. He said since Tonya was in the hospital already and needed a care item that was a necessity and was not provided at that hospital the ambulance ride would have to be absorbed by the hospital. He then contacted an administrator at the hospital and the warped ball began rolling.
Of course then a case manager had to contact Blue Cross and okay things. Several hours rocked on and the case manager told Tonya after about 3 hours they were still waiting on Blue Cross to contact them back. Tonya called a Blue Cross rep and talked to someone, who in turn talked to their supervisor, who said, since there is not another facility closer that provides that service Blue Cross will pay for the transfer by ambulance there and back.
The case manager came back in around 330 and said Blue Cross will only pay if you are admitted to another hospital.
I think this is the hospitals way of saying , we are not absorbing the cost of an ambulance ride to Huntsville and back. So now, get this and listen closely. Tonya has to be discharged from Stringfellow on Tuesday, go to Huntsville and get the pump filled, then come back to Stringfellow to be readmitted. All in the same day. Of course the central line that the surgeon has put in will have to come out and then be replaced again when she comes back. Now do you understand why I said earlier the ball was warped?
If anyone knows of someone who works at Blue Cross in a high up position, please let me know a name and number so I can call and ask some questions. I would like to know what brainless boob comes up with these hairbrained ideas. It seems insurance companies work very hard to get out of paying for something but boy you better not miss one premium or you won't have coverage for long.
That's about all my rant for now. Oh, one other thing. The infection control doc said this morning that all cultures are coming back negative so they are now checking for auto immune diseases, like lupus and so forth. They sent out a butt load of blood work over the weekend. I still don't know what we are going to do about the fever. Maybe we will know more after this scan on Thursday.
Blue Cross. What a joke.
Until tomorrow,
Brian

Blake Is Improving

Blake is still very weak, but he was able to take 5 steps today. His hearing is still problematic. It could come back in six days, six weeks, six months, six years or never. We are praying for continued strengthening of his body and that his hearing will be restored.

Bill

If You Have Children Or Grandchildren, Take Note

Meningococcal disease is a serious bacterial illness. It is a leading cause of bacterial meningitis in children 2 through 18 years old in the United States. Meningitis is an infection of the fluid surrounding the brain and spinal cord. Meningococcal disease also causes blood infections. About 1,000 - 2,600 people get meningococcal disease each year in the U.S. Even when they are treated with antibiotics, 10-15% of these people die. Of those who survive; another 11-19% lose their arms or legs, become deaf, have problems with their nervous systems, become mentally retarded, or suffer seizures or strokes. Anyone can get meningococcal disease. But it is most common in infants less than one year of age and people with certain medical conditions, such as lack of a spleen. College freshmen who live in dormitories and teenagers 15-19 have an increased risk of getting meningococcal disease. Meningococcal infections can be treated with drugs such as penicillin. Still, about 1 out of every ten people who get the disease dies from it, and many others are affected for life. This is why preventing the disease through use of meningococcal vaccine is important for people at highest risk.

Meningococcal conjugate vaccine (MCV4) was licensed in 2005. It is the preferred vaccine for people 2 through 55 years of age.

Sunday, July 06, 2008

Tonya Update

Welcome to day 18 of Tonya's hospital stay,

Today the doc said he didn't believe Tonya's pain pump was infected. He is going to call the pain management doctor Monday to see about getting some advice on the pump. Tonya told the doc she had to have the pump refilled by Thursday at the very latest. The doctor told her she wasn't going anywhere until he found out what is wrong with her. She is still running a temp. The doctor has also ordered blood tests that can't even be done at the hospital lab. I don't know what tests he is requesting but it must be something that isn't done on a regular basis.

Since Tonya has to have her pump refilled no later than Thursday, I am going to talk to the hospital administrator tomorrow to see if we can arrange some type of way to get the pump refilled and still allow Tonya to have all the tests done that she needs. Maybe something will give before Thursday and we will know what's going on before then. Maybe I'll know more tomorrow. I have to go back to work tomorrow so the update for Monday and Tuesday will be late in the evening.

Until day 19,
Brian

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